Friday 15th. July meeting and we had five new members who were all welcomed into our group. This was a significant boost to our numbers and hopefully this will continue. We had very interesting talk from Mary Williams who works with Neath Police and talked about staying safe in your home and outside. Lots of information and advice and a lively discussion around such things as scams, nuisance phone calls, junk mail etc. I think these things are a menace to all of us, and we should be very wary of anything which sounds too good to be true. It probably is..
This was followed by Rhiannon from the COPD team who demonstrated inhaler technique. Anyone who uses these devices needs to know how to use them correctly or they are of no use whatsoever.
If the summer ever comes this year enjoy it whilst you can.
Sunday, 17 July 2016
Saturday, 18 June 2016
On Friday 17th. June we had the relaunch of Breathe easy Neath Valley. What a turnout, we had 57 people present from all over the NPT area, There were talks from Dr David Vardill the chest consultant from Neath Port Talbot hospital, who talked about lung desease and what effect it can have on you, also about manageing you condition, he then answered questions on that subject,
Rhianon Kendrick from the COPD team talked about her work and Pulmonary Rehab. Then Joseph Carter, head of BLF Wales talked about the work of the BLF and how it can help all those who have a lung condition. The audience were then treated to me talking about what BE Neath does and how good it is to be a member of this group.
Later in the afternoon Gareth Marsh talked to us about a fascinating sujbject
, The Nos Gallan road races which are help every New Years eve in Mountain Ash to commemorate the life of a man who according to legend is the gratest runner who ever lived. If you are interested in learning more about this just search for Nos gallan and there it will be.
All in all an interesting afternoon.
As you will have realised, I shall continue with the blog, but perhaps not as regularly as my wife did.
Rhianon Kendrick from the COPD team talked about her work and Pulmonary Rehab. Then Joseph Carter, head of BLF Wales talked about the work of the BLF and how it can help all those who have a lung condition. The audience were then treated to me talking about what BE Neath does and how good it is to be a member of this group.
Later in the afternoon Gareth Marsh talked to us about a fascinating sujbject
, The Nos Gallan road races which are help every New Years eve in Mountain Ash to commemorate the life of a man who according to legend is the gratest runner who ever lived. If you are interested in learning more about this just search for Nos gallan and there it will be.
All in all an interesting afternoon.
As you will have realised, I shall continue with the blog, but perhaps not as regularly as my wife did.
Wednesday, 13 April 2016
Sadness and pride
Good morning to everyone who has followed this blog over the years. I have to tell you now that Margaret Barnard [my wife], sadly passed away on Friday 8th. April, so I fear that the blog may not continue. As a memorial to Margaret I have set up a just giving page to try to continue her fundraising legacy. Please take a look and if you are able donate so that her work may continue. Just search for Just Giving, then search for Margaret Barnard and follow the instructions.
Thankyou
Douglas Barnard
Thankyou
Douglas Barnard
Sunday, 3 April 2016
Happy 10th Birthday
It doesn't seem long ago that we held our first Breathe Easy meeting in our lovely Owain Glyndwr Community Hall and here we are celebrating our 10th birthday.
We had an unusual speaker too - a funeral director and he managed to chase away many fears built up by afternoon TV advertising about the cost of funerals. He took us through a breakdown of costs, ie types of coffin, crematorium, burial plot, hearse or hearse plus cars etc. What it all boils down to of course is if you want more than a basic funeral it will cost more. He estimated that a basic funeral would cost between £2,300 to £2,800, which is a far cry from the £7,000 we are often told on afternoon TV advertisements. He also talked about doing a preplanned funeral, which would be paid for at todays prices. That is always worth thinking about.
It was surprisingly quite a light hearted afternoon and we ended up with some funny funeral stories - here's one that made me chuckle. It was midwinter, icy conditions and the road was slippery. The crematorium was at the top of the hill. The hearse got so far then began to slide back. The following cars managed to get to the side to allow it to pass with only the odd bump or scrape, until it reached the bottom of the hill, where the police car. which had been directing traffic was parked. And, yes, you guessed it, the hearse slid right into it. The daughter of the deceased was heard to shout out "My mother's coming back!" imagine being the policeman reporting the damage to his patrol car.
Our chairman David looks ready to tuck in with a glass of champagne.
We had an unusual speaker too - a funeral director and he managed to chase away many fears built up by afternoon TV advertising about the cost of funerals. He took us through a breakdown of costs, ie types of coffin, crematorium, burial plot, hearse or hearse plus cars etc. What it all boils down to of course is if you want more than a basic funeral it will cost more. He estimated that a basic funeral would cost between £2,300 to £2,800, which is a far cry from the £7,000 we are often told on afternoon TV advertisements. He also talked about doing a preplanned funeral, which would be paid for at todays prices. That is always worth thinking about.
It was surprisingly quite a light hearted afternoon and we ended up with some funny funeral stories - here's one that made me chuckle. It was midwinter, icy conditions and the road was slippery. The crematorium was at the top of the hill. The hearse got so far then began to slide back. The following cars managed to get to the side to allow it to pass with only the odd bump or scrape, until it reached the bottom of the hill, where the police car. which had been directing traffic was parked. And, yes, you guessed it, the hearse slid right into it. The daughter of the deceased was heard to shout out "My mother's coming back!" imagine being the policeman reporting the damage to his patrol car.
Friday, 11 March 2016
March newsletter
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Thursday, 10
March 2016
Dear All
First of all I am really sorry that we felt it
necessary to cancel the abseil this year, but it became increasingly obvious
that I am not going to recover from my recent hospital stay in time to give the
event my best. Hopefully we will be back on track, business as usual next year.
We have had a good run so far. This would have been our tenth abseil and we
have raised £44,350
over those years. So I think we can be quite proud of ourselves.
Our next speaker will be Scott, from Les Davies
Funeral Directors, from the Neath Funeral Home. So have your questions ready –
i.e. prepayment, how much, what type, how many choices, religious or secular,
etc. The list goes on.
I know we are a month late but we will celebrate
our tenth birthday in March. The cake is ordered; just bring yourselves in
celebratory mood.
Doesn’t it make you feel good to look out of the
window and see the sun shining ? Let’s hope it lasts. A long warm spring would
be lovely.
Pam Walters is working hard with GP surgeries in
parts of ABMUHB, identified as having high occurrences of people with COPD. She
is launching new Integrated Breathe Easy groups in those areas. Our turn, as an
established group, will come later in the year, possibly in May. It will be
great if we can reach and support more people. We all know how being a member
of a group like ours can help so much for people living with all lung
conditions.
Best
wishes
Margaret
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Sunday, 6 March 2016
Living with COPD
This write up has been a long time coming because as the meeting was taking place in Neath, in February, I was in hospital in Reddich with yet another wretched exacerbation of my COPD. I am getting pretty sick of this happening this winter, I have never been ill like this before, even though I was diagnosed eleven years ago. Let's hope this is the last one and I can look forward to spring.
Our members used the meeting time to talk about the problems of living with COPD and the effect it has on their lives.
Our members used the meeting time to talk about the problems of living with COPD and the effect it has on their lives.
- we usually don't look ill and so people don't understand why we need to lean and rest, sit for a while, use a Blue Badge parking space etc.
- so many inhalers make life confusing ie what each one does, how to use it properly. It was decided that the pharmacist should always instruct how to use each inhaler.
- having a wash/bath/shower/cleaning teeth/hair washing can be exhausting.
- the speed of the onset of an exacerbation is frightening. There maybe a couple of days of feeling generally under the weather, and then WHAM ! it's like walking into a brick wall. Suddenly your chest is tighter and you can't breathe. We all need the security of rescue meds in the home.
- often just too exhausted to eat, think or make simple decisions
- arranging outings etc has to be carefully thought out as simple tasks take a long time.
- getting exhausted just going to the toilet - bowel movements being especially difficult.
- a carers concern was when to call in which service - ie respiratory team, the GP, dial 111 or 999
Tuesday, 9 February 2016
Abseil at Dinas Rock 2016
I am really sorry to say that we have had to cancel our abseil this year for unforeseen reasons. It will be business as usual next year though. Hope to see you then.
Have you ever thought you would like to abseil ? Well, now's your chance.
We are holding our annual event in the Neath Valley in S Wales (just off the M4)
Just call or email me and I will send you everything you need to know to join us on a fun day.
Newsletter - February 2016
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Tuesday, 09
February 2016
Dear All
We will be celebrating our tenth birthday at our
next meeting on 19th February. Instead of having a speaker we are
all going to share our experiences of living with lung disease and the ways we
have found to overcome problems. So, all of you have a big think, and make
notes, of some things to bring to the meeting. I am sure we can all learn a lot
from each other. This is for carers too, as you too are affected by the
consequences of lung disease – it’s a life changing experience for all of us.
It’s time to start advertising the abseil again
this year. I will bring some posters and application forms along to the next
meeting and I am sure you will all help to display them in shops, pubs and
clubs in the area. We always have such a good turnout each year and I am sure
we will have the same success this year as well. So far we have raised £44,350
– it would be great if we could reach £50,000 in our tenth year as it is our
tenth abseil too. For those of you receiving this by email, I have attached a
poster. I would be most grateful if you could display this in your workplace,
local shop, or another place where it will be seen by many. Thank you !
I hope you are all managing to survive in this
awful weather – Doug is down the garden right now salvaging what he can from a
garden shed and the greenhouse, one blown over in the wind and the other with a
load of broken glass. What a mess ! But
our daffodils are out early, which always make us smile. They are such cheerful
flowers, promising warmer weather to come.
Best
wishes
Margaret
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Saturday, 16 January 2016
Baywater Health and oxygen provision
This is the first post of 2016, so Happy New Year to all my readers and thank you for following the story of our Breathe Easy group.
Yesterday Allison Channing, from Baywater Healthcare, came to talk to us about oxygen and the various ways it can be delivered. This link will tell you in more detail about oxygen therapy - www.baywater.co.uk/patient-carer/our-therapies/oxygen
Allison brought one of the new cylinders which has a flat bottom - much laughter ensued over the benefits of flat or rounded bottoms, but those of you who use oxygen cylinders know how infuriating it has been that they don't stand when we put them down to rest.
The Inogen One on the right, is lightweight, portable, in so much as it can be carried, and is recharged from mains electricity or your car battery.
The Sequel Eclipse is much heavier, needs to be pulled or pushed on wheels. It can be used overnight for those needing that level of use. Both of these machines give you greater freedom, especially when travelling. All you need is your machine, a charging lead and, should you choose to buy one, a spare battery, to give you more time away from home. I have recharged mine in restaurants while out for a meal and on the train while travelling from South Wales to London.
Some of our group had never seen some of these before and it had certainly given them food for thought. Allison's message to us was, talk it through with your oxygen nurse and see what will best suit your needs, and the Baywater Healthcare will provide that for you.
Yesterday Allison Channing, from Baywater Healthcare, came to talk to us about oxygen and the various ways it can be delivered. This link will tell you in more detail about oxygen therapy - www.baywater.co.uk/patient-carer/our-therapies/oxygen
Allison brought one of the new cylinders which has a flat bottom - much laughter ensued over the benefits of flat or rounded bottoms, but those of you who use oxygen cylinders know how infuriating it has been that they don't stand when we put them down to rest.
The Inogen One on the right, is lightweight, portable, in so much as it can be carried, and is recharged from mains electricity or your car battery.
The Sequel Eclipse is much heavier, needs to be pulled or pushed on wheels. It can be used overnight for those needing that level of use. Both of these machines give you greater freedom, especially when travelling. All you need is your machine, a charging lead and, should you choose to buy one, a spare battery, to give you more time away from home. I have recharged mine in restaurants while out for a meal and on the train while travelling from South Wales to London.
Some of our group had never seen some of these before and it had certainly given them food for thought. Allison's message to us was, talk it through with your oxygen nurse and see what will best suit your needs, and the Baywater Healthcare will provide that for you.
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